Rough Road

I sure had a rough hospital stay this last time. I really thought I wasn't gonna make it home. I was so abused. My portacath wasn't useable so I must've gotten stuck at least 30 times and they tried to access the unusable port about 20 times before they decided to surgically remove it and replace it. Well, it apparantly is flipped upside down and STILL unusable!!! They kept me so wiped out I hardly remember most of the stay, which I actually think might be a good thing. I just am so aggravated about it I have to talk to my Dr. this next stay to let him know that those meds have to be altered. They put me on the same stuff when I go in and I don't like being so messed up! I am glad that I am finally climbing out of the hole. I was beginning to wonder if I was ever going to. Thank God for my family, because without them I don't believe I would have any purpose to climb out. Thank God for my family.

Back Home

Wow, with each hospital stay it seems to take so much longer to bounce back! You know ppl keep asking me what genes I have I found the paper; one is Delta F08 and R117H. I just don't know much about this stuff, just know I have it and how it has affected my life and those around me. Well, it's like 5:30 a.m. and I am going back to bed!